Thursday, October 31, 2013

Ladies and gentlemen cancer has

Left the building!!

My mom made it through just fine and in her room recovering asking for her lip gloss.

Thank you to everyone for all your love and support. You are all so amazing. She couldn't have done it without you praying for her and sending her love.

Xoxo
Diana

Hello everyone :)

Just wanted to let everyone know my mom is in surgery now. I will keep everyone posted when she is out.

Love and hugs to everyone,
Diana

Today's the day

Please put me in your thoughts and prayers today. Specifically at 2pm.

Think of me filled with strength that I know I will need for many days after today

Pray that my faith remains steady and it carries me through

Hope that we stay close and loving to each other. Through good, the not so good and the downright knarly

Wish for understanding, that we able to apply it to each other in all the best ways

Pray that I stay on the right path to do all that's needed to be healthy no matter how difficult

Finally pray, wish and send thoughts for me to not make a run for the border, change my name to Rosalita conchito and make tamales for a living. I have said it a few times in the last few days when I'm asked how I am and while we laugh what I haven't said is I'm only partially joking.

Monday, October 28, 2013

Shopping for cancer


When you go through breast cancer your doctor gives you prescriptions for more than a few things besides the usual medicines. Apparently they write a prescription for bras.  Did you make your appointment yet for your after surgery wear my doctor asks? Oh yes I tell her I'm going today, in fact the women who called me to book the appointment is a former patient of yours and a big fan. She smiles very modestly and says glad to hear you are getting that done, they are very helpful.

Well before you imagine I'm off to fancy Nordstroms or Macy's shopping carte blanche with doctors orders insurance footing the bill the whole way allow me to clarify. It's located at the hospital, in the cancer center at a boutique. However before you get to the cute little boutique you check in first, almost like a patient checking into the hospital, you answer questions about insurance and other things. What do you for a living? decline. Whats your race? decline. religion? decline. Only then are you finally escorted to the retail Mecca.

In the name of the store is the word Treasure. Indeed it was. I'm suddenly surrounded by piles of glittery trinkets, bedazzled shirts, fashionable hats and scarves in a wide range of colors and patterns you could imagine. Like a major department store right? Sorta. The shirts say Mammo is your ammo in pink camouflage. The bracelets have the shiny word FAITH or similar like words in crystals. And the colorful scarves are to fit your stylish bald head during and after chemo. Immediately I want to try them all on. You see I've been on a desperate hunt to find sassy stylish headwear for a few weeks now. Everyone please calm down. The crisis is over. I will be rocking some fun head gear. 

The thoughts in my head of me decked out in silky scarves are interrupted by my fitter who takes me to an area in the back. Party in the front, business in the back I think (please see previous blog entry about having cancer does not make me suddenly mature-just accept me). She asks me if its ok if one of their line reps they have visiting the store join us. In the dressing room. I glance at her and she seems to smile like hey girl-please? Sure I say. After all what is one more person taking a gander I think and shrug to myself. Breast cancer certainly doesn't come with modesty.

So there I am in this lushly appointed spacious dressing room with person #52 and #53 who has seen me without a shirt on in just the last few weeks alone. I soon realize my fitter with her vast experience is a wealth of knowledge about navigating through after surgery and beyond. She shares with me lots of really important information. Gold nuggets really. I'm told I will need to leave with items that clasp in front, are easy to put on and are what the doctor wants me in as well as this after surgery camisole (yes it buttons down the front) to hold devices that will be coming out of me. I won't elaborate on that any more. Im presented with a goody bag. At the top are these adorable pillows. Apparently there are amazing people out there who sew these gorgeous incredibly soft heart pillows in pink and white fabrics for me to be comfortable after surgery. Love those people. I don't know them but mad love out to them. Mostly because Im impressed with their sewing skills. I have to throw pants out if I lose a button and these ladies make these heart pillows??

Ok Lolita take your shirt off we are going to start fittings now knowledgable lady tells me. Yoooouuuu first I say in my cutest voice. They both laugh and then wait. I constantly resist the urge to say wait slow down! We need to stay on first base a little longer during each and every shirt off visit I have had. After a few minutes Im asked how it feels, what I think. Well I say with hesitation in my voice. What is it she prompts me? I explain that I do not own under garments that are just beige or white. Do you have like purple or maybe things with sparkles on it I ask hopefully? Oh hold on, hold on the rep gal says and comes back with lovely things named jungle mist and so on. Go on girl I tell her put those in the bag, those are going home with me.

So knowledgable lady tells me, Lolita I like you and your spunk! This is a tough time I can imagine and you are incredibly positive. I have the name and number for this great support group of gals who I think you should connect with while holding the paper in her hands. She tells me that many of the support groups out there are older women who are married and past menopause and don't care that much about sex. Oh no I care about sex, hand it over. I'll take that number. In the bag it goes.

I told you she had gold nuggets.



Sunday, October 20, 2013

Philippians 4:6-7


“Do not be anxious about anything, but in everything, by prayer and petition, with thanksgiving, present your requests to God. And the peace of God, which transcends all understanding, will guard your hearts and your minds in Christ Jesus” (Philippians 4:6-7).


Saturday, October 19, 2013

Have you ever heard that song by

 Pink called Try?

It seems to be a song about heartbreak but after I heard the main verse a few times I googled the lyrics and realized the song and the words could give meaning and relevance to many things. In particular to me right now. 

I have always been a lover of words. Wether it's on a page in my favorite book or any book, on a computer screen, text box or in song form being sung with angst or attitude. All of those words I cherish them. I admire them. Even strong ones with some high emotion behind them. Inside I clap and applaud the person. Good for you person with that strong opinion I don't care for or agree with I think to myself in my head. 

So hearing the words You gotta get up and try, and try and try sung over and over a few times sounds exactly like what I need to be doing. Probably good to hear that song and take it all in. It helps to counter act the impulse to not try that washes over me from time to time. But in a bratty 2 year old not thought all the way through kinda way. Kinda like a mmm maaaaybe (drumming my fingers on my chin thinking) mm I'll pretend it will go away and I don't have to do all that scary sounding shit. Mmmmm maybe (thinking some more) I can stay hidden with the covers pulled tightly over my head and no one will notice. Yea kinda like that. And trust me it can get easy to think that's a good idea. For like 6 minutes.

It's just a person gets tired sometimes. When I vaguely use the word person of course I mean me. Not like in the body tired but like in the head tired. Like my brain is saying....Really lolita? Really girl? Coooome ooooooonn! We ain't even gotten over all that other craziness yet! My brain pointing all dramatic like at that "other" craziness that didn't seem all that long ago. Somehow when I give my brain a voice it comes out like a Shaquita type personality with those huge old school gold hoop earrings, long nails with colored tips, lots of gold rings, way tight skinny faded jeans, these fly high tops, and hands on hips. Every time. Don't ask me why. 

Truth is I don't want to do this. I don't want to do any of this. By this I mean go to this doctor, that doctor, this surgeon or that one (its a lot of docs folks) to hear what's recommended, have surgeries, take medicine and know what I know. As amazing those doctors are at what they do it just seems like a ton of not fun things are going to happen. 

And that's why I might cling to a song that I would have previously heard, happily sung along to then just went about my merry day without another thought. Now? The words. It's the words.

You gotta get up and try and try and try. 
----------------------------------------------------------------------------------------------------
Partial lyrics to the song Try by Pink

Ever worry that it might be ruined

And does it make you wanna cry?
When you're out there doing what you're doing
Are you just getting by?
Tell me are you just getting by, by, by?

Where there is desire

There is gonna be a flame
Where there is a flame
Someone's bound to get burned
But just because it burns
Doesn't mean you're gonna die
You've gotta get up and try, and try, and try
Gotta get up and try, and try, and try
You gotta get up and try, and try, and try

Saturday, October 12, 2013

Doctors orders


Driving around on this gorgeous day windows down with wind in my hair blasting music seems to be just what the doctor prescribed. Old school, rock, hip hop, electronica, you name it and it was pretty much on the menu today. And while she didn't exactly say for me to do that very thing she mentioned to me that during this time it's important to manage stress levels and continue my positive attitude. So of course I picture her writing a prescription that says... listen to fun music and sing loudly along as care free as possible. Decibel levels? Mmmm not so much. Im sure she didn't mean for the eardrums to be impacted during said stress relief therapy. 

The real prescription or advice she shared was to find comfortable button down the front shirts for after surgery. This is to minimize raising hands above head. She puts her hands up in the air above her head and said you don't want to do this a lot or at all. Ok got it. Sounded fairly easy. I went and looked in my closet. As I have an intense dislike to shopping this seems to be the path to least resistance. Apparently I don't favor that look much. Or at all. 

So there I go off to find these shirts. Surely they exist I tell myself. A few stores later and all I can ask is Seriously, must I look like a cowgirl while convalescing from a major surgery? Button down nightgowns aren't any more appealing. Yuk I say while stamping my foot and clenching my fists by my side. Finally after passing one nightgown several times in what could only be described as a yet to be named color I yanked it and tossed it in the cart telling it (yes the nightgown) don't get comfy, you won't be staying long. This is what I'm reduced to. Muttering at my cart in the aisles while "shopping". 

To get the bad taste out of my mouth and erase the memory from my mind I walked sorta ran to the shoe section and gazed at the lovelies. I even took pictures to send to a friend who would understand while I tried them on. 

Hence the almost eardrums piercing music on the way home, well not quite piercing but you get the idea. I'm shaken but not stirred friends.

Sadly as I type this I come to a crushing realization that I still have to go take that nightgown (wrinkling my nose) out of the car and put it in the house. Somewhere.

Friday, October 11, 2013

Train the brain


Strong

Belief

Love

Health

Faith

Powerful

Family

Lovely

Healed
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
The thought manifests as the word;
The word manifests as the deed;
The deed develops into habit;
And habit hardens into character;
So watch the thought and its ways with care,
And let it spring from love
Born out of concern for all beings…
As the shadow follows the body,
As we think, so we become.
BuddhaDhammapada
Indian philosopher & religious leader (563 BC - 483 BC)   

Sunday, October 6, 2013

The way we organize our lives


Very often centers around what's happening in it at the time.

For me it's having things to organize the cancer stuff. This phrase alone makes me roll my eyes a bit. I promise you. And of course me being me I resisted this idea at first. Not being organized rather resisting giving more space to this frustrating all encompassing disease. However the situation at hand doesn't allow anything else. In all my other ways in life I do my best to not let chaos and disorder ruin my flow and movement so it must be applied here. Just a little odd, that's all. 

 Happily I can say that all appointments with my Doctors and related visits are confirmed through email. I read it, send an email to my daughter to calendar it for the family to stay updated and in it goes to my cancer email folder. Although sheepishly I admit it has a bad word before it with an arrow pointing at the word cancer. I created the folder on a day when I was feeling overwhelmed and not all together. I recall punching the keys on my keyboard a little harder than needed when typing in that folder description. It does make me smile sometimes now when I see it. Judge me not for it's my only form of allowed rebellion and a way to show my dislike of the whole situation without screaming for 5 full minutes in a row while kicking my feet on the ground. Without interruption. Hey, I never said having cancer would mature me anymore. 

So now I have a cancer bag that I put all my reports, receipts, films and my notebook for questions that I cart around almost everyday. I'm in fear of running to an important appointment not able to present what's needed, thus failing to get the information to take the next step. I tried at first to make it just a cancer folder. I chose a nice clean white one. Practicality and functionality forced that right out the window. Hence the bag. 

I even have a cancer pen. You know that goes in the bag. To avoid fumbling around when I need to jot down my info at a moments notice. But still. It's a cancer pen.

It might all seem normal to anyone else. Right? We organize and label according to our life at the moment. And eventually it will to me. Maybe. It's just I often find myself stuck between two places. One is a functioning normal person processing tough things at a terribly difficult time. Calmly positively moving in the direction I need to fight this and get back to my normal self (will I ever be normal again I wonder). Another is a person who wants to quit this ridiculous job of fighting cancer throwing my keys on the desk and walk away while mumbling this isn't me, you've made a mistake. 

So organizing, filing and labeling provides a small illusion of order and control on an extremely fast moving train. That job? I'll accept it.


Saturday, October 5, 2013

This did just happen


After looking at dishes in the sink for half a day I went into my boyfriends man cave, sat down next to him and let him know a sad but true fact. That when I do dishes it makes my cancer hurt. His reaction? He half smiled, made a sound that was sorta like a awww, not quite though and hugged me. And then went back to what he was doing.

A bit drastic? Well you might think I'm going overboard and I might be. However I do need to point out that I did dishes twice this week (all dramatic like, holding up two fingers)

I sense his power to out wait me or ability to pretend there are no dishes in the sink may just  be far greater than my desire to get it done. True story. 

My new plan is the next time he comes in the room is to quickly put the phone to my ear pretend I am talking to my "doctor" and say loudly: "wait, hold on doctor (I shall place emphasis on doctor) let me write this down. Uhuh uhuh. So don't do dishes or sweep the floor? Right. It makes the cancer hurt. Ok got it. well thank you doctor." All the while silently mouthing to him see, I told you.

Wish me luck!

Friday, October 4, 2013

Ladies and gentleman cancer will soon leave the building....

We have a surgery date!

When: Thursday October 31st---should I dress up?? (pondering)

Where: at the place they take the f$@& Cancer out

For actual place and or location please message my daughter, brother or sister for more specifics on their facebook. Forgive me for my vagueness as this blog is completely public.

While I am not super excited about the thought of surgery, staying in a hospital and all that will follow this I am very excited about moving in the direction of removing cancer from my body and getting just that much closer to my regularly scheduled program. Which is: living my real life.

I've tried not to clench my fists and stamp my feet too much at what is happening. I can not say its easy though. In all the ranges of emotions you can possibly go through the highest on the scale for me  is simply frustration. It lessens with each piece of information I get that helps me process and understand what choices to make, it lessens with each decision I actually do make and seems to almost fade away the closer I get to actual action.

Will there or could there be a set back or not great news coming up that slows this progression of good stuff that we got going on? I can't tell you and neither can anyone else with any real confidence. So I want to say out loud, again ( maybe more for me than you) that I simply have to stay present and in the moment. Lucky for me I have experience with just that very thing for many years. Except for the other day when I put toner on my eyes instead of makeup remover. Yea, not being "present" like at all. Still a monumental task given the present circumstances. And something I gladly take on.

After all my new full time job is #kickincancerinthejunk

Thursday, October 3, 2013

All those mushy statements about how beautiful life is means so much now.....

You hear people talk about being grateful for the little things in life. Stop and smell the roses type stuff. So for me now life is right along those lines, especially today. Example: I have cancer but I am happy that ... or I dont have to ...... Kinda strange huh? While I have always been a grateful and positive person I just never knew it would apply to me in a medical sense and in the most bizarre way.

Day in the life. Day in the life folks.

The visit with the oncologist after my MRI gives good news. Relatively speaking of course and well heck I'll take it.  Basically its a green light for no chemo right now, before surgery, and to go ahead and get the show on the road. Just an ultrasound and a few visits to my breast surgeon away from getting the f%^&# cancer outta me! Who gets excited about major surgery? I do I do (raising my hand).

By the way is there a person in a 20 mile radius who has NOT seen my breasts, touched them, and or imaged them?? Lawd have mercy, surely there isn't.  

So what am I thinking now? I am just breathing my dears. And smiling. But mostly I can breathe. Talking with my oncologist takes stones off of my back. It seems each action and step I take removes another. I'm getting lighter by the day. Woohoo! :)

Still so much to know and a tough road ahead for sure. Like exact size, exactly how invasive it is, how many rounds of chemo and so on. That information comes after surgery.

Member in this world now? -- small victories. Exactly. We get happy about them and then go eat pancakes. My proverbial form of smell roses. They were delicious! Either way its celebrate and breathe. 
 
More news to come. Thank you again to everyone for their thoughts and prayers and for reaching out. I AM strong I AM positive. Thats a good thing. 

xoxo
lolita
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Some words from Dr. Wayne Dyer

  I appreciate all that I am and all that I have.

Stop focusing on what you do not have, and shift your consciousness to an appreciation for all that you are and all that you do have.


Tuesday, October 1, 2013

I'm happiest in the morning when I hear this

Song on my way to work or appointments.

I sing at the top of my lungs, moving my shoulders and thumping the steering wheel with unabashed feeling.

http://m.youtube.com/watch?v=5y_KJAg8bHI&desktop_uri=%2Fwatch%3Fv%3D5y_KJAg8bHI

 Give it a try. Song by Avicii-Wake me up when it's all over


The things I worry about now

Yes- yes I'm sure you are thinking the usual... Well! Sure! she must be worried about The "cancer" ! And so on and so on. Well yes. I am of course. 

Mostly though if I'm being honest I actually worry about the following and variations of this:

When is that daing cancer card coming? You know the one I get to take out when i want to just get out of doing something like cleaning or just easily swiftly win an impossible argument. Boom take it out and game over, I win. You clean the bathroom not me. Don't think I didn't ask.

Will I look cute bald!? I suspect not folks.

Can I pull off that over the top overly blonde (ahem stripper) type wig Jennifer Anniston wears in The movie We are the millers? Yea Mmm not so much.

How the hell does anyone draw on eyebrows??! Seriously?! Like daily! Would I even need to? This will add a half hour a day at minimum to my morning routine just to get it right. Ill simply never leave the freaking house.

How many times do I have to go bra shopping? I have done some serious investing in some cute bras now and then I start all over? Goodness gracious. 

Nothing real important yet just random thoughts screaming in my head. Questions of a vain women I guess. If you know me at all you know that these thoughts are real and not at all 

me trying to be brave and put up some jokes to deflect. Nope. Sadly it's how I think 
sometimes.  (Shrug)

Once again, the overwhelming gratitude I feel that anyone even wants to know what's happening, takes the time out of an immensely busy day to write me and or read my blog is just astounding to me. I'm over flowing with feelings and love. 

A small request? Please my family and friends do your best to process this (I do realize I had a head start in knowing) and catch up with me in the humor department. I'm afraid it's far too sad and serious and I may just go koo koo if it stays this way. I simply can't face things like that although I'm too painfully aware that everyone is different and has their very own process. I just feel strongly that this cancer doesn't get to take up all the space in the room. I can't let it. 

So the MRI last night was an experience in itself and I promise deserves its own blog entry. 
I will however tell you that once I donned the ridiculous wear for the test I promptly snapped some selfies to send off to a few people. You know to be sure I make this cancer thing look good.

Some of their responses:
1.You look hot!
2. don't try to twerk in that! you will fall and break your sweet azz! 
3. lets pray to the medical community for an intervention from issac mizrahi to design some awesome silk or cashmere lovely colored medical wear. 

Amen sista, amen. 

I told you my friends were "helpful". 




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